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In order to join, you will need to register by going to LuPUS MB and click on Register. Your account will be validated within 24 hours usually. Any problems, you can contact me below:
You will then be sent a username and password which you will need to use to join the discussions and post messages. Please read carefully the GUIDELINES at the LuPUS MB.
This is to make certain the LuPUS Message Board and its forums are safe places to be to say what you feel and think without fearing you will be judged or reproached or isolated. The LuPUS Message Board belongs to you and to all who come here.
*No* flames.
*No* offensive material.
*No* spams.
On the left hand frame, you will see Documentation -> Getting Started.
On the right, you will see at the top System Announcements where I may make some announcements. Underneath, you will see What is the LuPUS Message Board? and you can click on that and take a look!
Underneath, are all the forums so far. Diagnosis, Symptoms, Medication and Therapy, Emotional/Psychological are all forums about aspects of having lupus, lupus variant conditions and Hughes' (the antiphospholipid) Syndrome. The forum entitled Social and Personal is a forum which does not have any medical associations and you can talk about whatever you like. More recently I have added Teens with Lupus, for children, teenagers and their parents/guardians. Although Fibromyalgia is *not* an autoimmune disease, about 20% of lupus patients have the painful but benign condition and therefore, I feel this also ought to be included through suggestions received from the registered users of the LuPUS Message Board. I have also added a forum on Discoid Lupus, a skin condition which is different from systemic lupus erythematosus (SLE or lupus). Vasculitis is the most recent forum. You are welcome to make suggestions at anytime.
Please do not be afraid of posting or be afraid that you may cross over from one forum into another. It really does not matter because all these forums are about lupus and the people who have this diagnosis who live with family and friends who are affected by lupus.
When you have written your message, you will see at the end username and password. You must fill these in from the email sent to you. If you forget or lose your information, feel free to contact us again!
If you have any comments or suggestions, please go to the Contact, which can be found under Utilities in the left frame and you can email one of the Moderators.